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Julia Sweeney's avatar

This is such an important post! I’m so glad you wrote it. I learned a lot, and I laughed out loud. Those things don’t often go together. I had an acquaintance many years ago who had this. Her marriage failed because of it! And she thought it was her fault. That is heartbreaking. Anyway, love your writing, I want to hear everything you think.

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Joan Barron's avatar

I’m really sorry you’re experiencing this. I’ve had pelvic floor issues for years. It stemmed from a fall I took in 2001. Ice storm. It entrapped the main motor and sensory nerve of the pelvis, the pudendal nerve

I highly suggest women’s health PT. I ended up at Mayo in Rochester and from there sent to France , the country. I had decompression/transposition surgery of the pudendal nerve in Nantes, France in 2002. It was torture. The recovery was awful. 2 plus years and I’m still, to this day, dealing with pelvic floor dysfunction. There was no one in the Twin Cities that could help. I ended up out in San Francisco with a PT. Her name is Stephanie Prendergas, she was working with a doctor, who at the time, was the President of the International Pelvic Pain Society. She now has several practices of her own.. She’s out in LA now. I can’t recommend her enough. If your insurance covers it , I would try to at least have a consultation with her. The name of the practice is Pelvic Health & Rehabilitation Center. My husband and I have been together for 37 years , married for 34. It was several years where it was impossible for us to have sex vaginally. Lucky for him, like you, I had always been a sexual human. Loved it. Still still love it. There are lots of things you can do, but there really isn’t anything that compares to the “real thing”. That’s closeness is what I missed. Hang in there. Hopefully, once treated properly, things will improve for you & your husband. I could relate to a lot of what you wrote. I too was made to believe it was all in my head , then given copious amounts of opioids. But that’s another story.

Good luck & I’ll be hoping for the best possible solution & outcome. ✌️❤️

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